Posted on Wednesday 19 October 2005
This article in The Washington Post touches on something that Damon mentioned in the comments about genetic testing. It’s a pretty touching article that hits on the ethical dilemma of genetic testing. Our society will eventually have to acknowledge that this is a form of discrimination against a specific class of humans.
Whenever I am out with Margaret, I’m conscious that she represents a group whose ranks are shrinking because of the wide availability of prenatal testing and abortion. I don’t know how many pregnancies are terminated because of prenatal diagnoses of Down syndrome, but some studies estimate 80 to 90 percent.
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At a dinner party not long ago, I was seated next to the director of an Ivy League ethics program. In answer to another guest’s question, he said he believes that prospective parents have a moral obligation to undergo prenatal testing and to terminate their pregnancy to avoid bringing forth a child with a disability, because it was immoral to subject a child to the kind of suffering he or she would have to endure.
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Margaret’s old pediatrician tells me that years ago he used to have a steady stream of patients with Down syndrome. Not anymore. Where did they go, I wonder. On the west side of L.A., they aren’t being born anymore, he says.
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What I don’t understand is how we as a society can tacitly write off a whole group of people as having no value. I’d like to think that it’s time to put that particular piece of baggage on the table and talk about it, but I’m not optimistic. People want what they want: a perfect baby, a perfect life. To which I say: Good luck. Or maybe, dream on.
Tags: abortion, disabilities, down-syndrome, ethics, genetic-testing


